When I was first given the RX for Neurontin I was told to be sure to start it when I did not have to leave the house and that nothing was planned for the next day…that it would make me tired. I was told pain pills would increase the sedation effects. I started taking it and after two weeks pushed it up to two times per day. I even started taking it with my pain pills after the snapping incident.
I haven’t slept in weeks…
My arm pain is horrible since I am not needing to take the pain meds from surgery as often. The head jerking happens randomly throughout the day, every day.
Can I just get a break? Please? The pain even effects my blogging now.
Today I went in to have X-rays taken of my elbow to see if there is some sort of injury to it that may be causing the intense pain and the vein swells. We know I have fibromyalgia, but that is not what’s kicking my ass. It’s the arm pain, headaches and irky jerkiness.
Tuesday I see the Rheumatologist and most likely have meds switched. No reason to continue on with this one. When I called and talked to the PA she told me I could take some Tylenol PM and get some sleep. I have seriously been staying up until 5 am every night and then getting up with the kiddos…no naps either. Last night after the kids were fast asleep I popped two of those suckers quicker than any junkie I’ve ever seen on “Intervention”….
I was out.
I slept all night long and it was awesome.
Girl on Fire
Latest posts by Girl on Fire (see all)
- Hey, it’s been a minute… - April 14, 2025
- Benefits of Dual Diagnosis Treatment - January 25, 2023
- How to Help Family With Mental Health Issues? - January 3, 2023
In the past I have used Tylenol PM and first I felt fine but then after the 3rd night it had a counter affect and I felt like I was on speed. It was the most terrifying feeling! This has happened to me on Benadryl too. So I guess I am just saying I hope you can find something else for long term.
Did you ever try melatonin? It works really well for me. I take time-released and sublingual.
I wish you sleep!!!
I hope the Drs figure out what is going on with the head jerking, you arent driving with that happening are you? Honey I am worried, let me know what they say!
Hugs!
I’m glad you were finally able to get some sleep. There’s nothing worse than not being able to sleep for weeks on end.
Melatonin works for me too, but I know you said your dad had nightmares on it. I sure hope you can find something to help you long term!!
I am so sorry you dealt with that! We quit me on the Neurontin but the Skelaxin we ran me out of samples so my body had to go from 800 mgs 3 times a day to NOTHING. It’s been hell. My cousin has started telling me about Butterbur and Magnesium for Chronic Pain, Migraines, etc. I just don’t know what to do anymore. (((HUGS)))
Neurontin didn’t do much for me, either. I had that jerking. I didn’t even know it! Like you, I don’t get sleep. I generally just pass out from exhaustion. I was having the jerking all night. My BF described it as ‘violent jerking’ and it wouldn’t wake me. (Talk about exhausted, huh?) Well, it was a side effect of an anti-depressant that they had put me on. I believe it was Cymbalta. So, look there first. Many meds, including pain meds, can cause it. My violent jerking has stopped, however, I still have mild jerking, at random, throughout the day and night. It’s worse when trying to go to sleep. It’s almost like when you dose off and get that falling effect, except I’m wide awake. This, I believe, is part of my nerve damage. I forget the name of the disorder but I’m certain that’s it. I have major nerve damage, as well as, a nerve that was cut during my hip surgery.
I really feel for you. If it’s anything like I endure, I know you are exhausted and frustrated. And, people just don’t get it. Even when they try to be supportive, they just don’t understand. Sometimes, honestly, I just cry. I am so tired and in so much pain that I cannot get relief from…. My initial injury that started all this was Feb. 2008. My surgery was Aug. 2008 and from then on, it’s been a living nightmare.
I’m trying to get a lawsuit together against my Dr. By the time I found out about the cut nerve, the statute of limitations was closing in. So, add stress…. Girl, you know what happens then! I voluntarily went on anti-depressants to help me battle. The one I’m on now knocks the edge off and helps some. I want to be able to function. I’m sure you find that you get so groggy sometimes with all the meds that the couch becomes your best friend.
I should stop rambling. Just know that I understand. I hope things get better for you and soon. I understand the ‘Just let me have one day of rest, no pain, anything….’ Don’t give up hope! Hang in there! If I can help, holler!
Big Hugs!