Things have been getting a lot worse lately. I had a horrible “episode” in Walmart the other day. People that know me have most likely seen the quick “head jerks” that happen to me. Sometimes it’ll just be once really fast, other times it is several in quick succession.
The other day it was 2 very long episodes that left me feeling almost as I did the day I had the stroke. It was very scary and the pain was so intense. It is almost as if an electric current is running through my body. It makes my head pull to the right and the sensation starts in the brain stem area and moves up until it has consumed my whole head. This is very different than a headache or a migraine and is more like I had stepped in a bathtub with a toaster.
It’s not pretty, it’s actually downright embarrassing. Like a conscious standing up seizure. I can only assume that this is directly related to my reducing my daily Neurontin dosage. I am down to one 300mg pill a day, it is clear that I need to be taking my full dosage. Sadly, until I get a new doctor that will not happen. I am on the last of my RX and that is why I weened my dosage down, to make it last.
I am searching for a general practitioner that is willing to treat my RSD as a self pay patient. I know that I need a Neuro, but it is very difficult to get one when you do not have insurance.
I keep searching for natural ways to improve my symptoms and one way is with Raw foods. I am trying so hard.
Yesterday was a horrible pain day for me. I finally realized why when the storm rolled in. I am assuming that the changes in pressure are the cause of the increase of pain when a storm is coming. Today I can barely walk. It’s getting to be way too much again. The veins throughout my arms and legs are huge, huge to the point that you can grab them. I can even feel that vein pain and pressure in my neck, which is scary as hell.
Girl on Fire
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I wish there was something I could do for you…..
I’m so sorry you’re going through this. My boyfriend has had constant pain for over a year. We found out he has a blog infection.
I wish there was something to make it all easier for you Mama!
I wish you can find a doctor who is more into healing than into the insurance. Granted they need to make a living, but there has to be someone out there that can help……….
I am so sorry you have to go through any of this.