So if you read my Doctor visit post, you know that I’m not having a very great time right now.
I’m not giving up though. Right now I am waiting on an appointment with a new neurologist. I’m at the point where I will even try experimental treatments. I actually signed up to be notified of clinical trials in my area. What else can I do?
Last night I cried as I scrubbed the bath tub. It was everything I could do to hold onto the brush and painful to put pressure into scrubbing. I did it though! I did it until it was done and then I was relieved and I felt accomplished. I can’t let myself fall into that place where I do nothing, because then I will become nothing and I’m not willing to let that happen.
We actually had rain last week and spotted this beautiful rainbow in front of the storm. It was only there for a brief moment, but we seen it!
Girl on Fire
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<3 Gah, I wish I could make it easier for you but know I'm always thinking of you!
Beautiful pic and post…
I really wish, as your mom, that I could take your pain from you. It had to have come from me, somewhere in the genes, the whole auto immune issue covers everything you have, RSD says it all. If only doctors would do pro-bono, take this task on to figure out what you have, write up a report for them medical journals, heck they would come out ahead and be doing what they pledged to do, Treat and help people to be able to live a normal life! Hang in there, wish I could be there to at least help with the foot work! We, your dad and I, love you so much and are so proud of you for continuing to struggle through with your everyday task plus homeschooler our 3 wonderful grand daughters.
((healing hugs)) sometimes it is so hard to put up that stiff upper lip & just go on… remember it is okay to take a time out & have a good cry, scream, beat the pillow time out! it can act as a stress reducer too. I have been involved with clinical trials before, as long as they are run by reputable doctors you should be okay. immune diseases really should be looked at a more ‘family’ of illnesses, since so many of them share “like” symptoms, and those symptoms can throw a doctor off the right treatment path… just because ones symptoms “lean” towards one type of illness, they should still keep that eye open to the other cousins of the illness, just in case or for a cross over treatment that just might help! best wishes for you , sweetie.
Such a gorgeous photo its perfect for feeling accomplished and working through some pain. Every small victory is worth celebrating. Love and hugs to you I miss you!!
thanks for visiting my WW. I hope this rainbow is a sign of good luck coming your way.
Very pretty!!! You don’t see one of those everyday.