That visit I had been waiting months for. It happened. It sucked. It was a waste of time and a huge disappointment. I cried the entire time I was there.
The new doctor is nice enough, I don’t want to bash her. But in the few minutes she seen me she tried to start me over from scratch with no diagnosis.
After years of working towards a diagnosis with my last doctor (the awesome one that moved away and left me), this was too much for me. I broke down. I try so hard to be strong through all of this, but I’m only human and there is only so much that a person can take.
Everyday is different. Some days I can suck it up and work through my pain. Others I can’t do anything because the pain takes over and reduces me to a blubbering mess of a person stranded on the couch.
She said I needed to see a neurologist. Yes, I agree. I most definitely do. Then she said something that shocked me and made me realize that she must not know anything about RSD. Who knows, maybe this isn’t RSD, but it does cover every symptom I have and no other conditions do.
The burning. RSD is the only condition that has described that horrible burning that I have. As I type this I am enduring these horrible sensations that never cease. That burning never goes away. Since that morning that I woke up, it has never ceased (besides when they had me loaded on meds in the hospital with I.V. drips of constant pain medication).
It has only spread. Over my skin, through my veins, muscles and bones. Symptoms have only become worse and they have coursed throughout my body.
She said “RSD does not spread”. Can you imagine how I felt at the moment? All the research I have done, all the patients I have spoken to as well as my last doctor? How could she say that if she knows anything about RSD?
Then she said “I really think you have a Neurological problem” Really? Um , yea and RSD is Neurological and she was talking like it wasn’t.
I tried to talk to her about my pain and the need for pain management. I told her how I have spent all of these years sucking it up, but there were days that I could no longer do it. I was the one that over the last several years that decided that I did not want pain medication. Now that I am to my breaking point, I’m denied? I had even had the accident with the Mandolin 2 days before, no pain meds for that either. She asked me what I had been taking for pain before, I told her Tramadol, but I had to stop taking it because I was allergic to it.
So that was my visit. This is what I waited months for? Nothing was solved, I wasn’t helped. I left crushed.
Today I made some calls. I finally found a Neurologist that will see me as a SELF-PAY patient! Praying that this one actually tries to help me and not over medicate me into a zombie like the last Neurologist.
So that call today gave me some new hope! That’s what keeps me going. Hope. Oh and these people…
Girl on Fire
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Tabetha King says
Sorry you are having such an awful time with the new doctor. I was hoping since she was taking over his practice and patients nothing would change. Believe me though I know hoe you feel or at least Vernon does. He just started with a new primary doctor who is constantly questioning why his rehab and neurologist’s care and medication choices. The rehab and neurologist have been there since day one of the stroke – I think they know what is best for him and his care. And of course we are still fighting with SS over his disability. They still see no problem with him and feel like he should just be able to get up and go like before. Complete Idiots in charge over there!! They hand out money to people who have used and abused drugs for years and are now twitching and jerking due to that drug abuse … and they grant them full benefits including insurance.
It really is so frustrating! I need to get a copy of my records I guess. You know what’s really weird…she started talking about checking my thyroid and why hadn’t been checked. I told her it had been and she kept telling me it hadn’t! I have all my blood test results! It’s been tested 3 or 4 times! Once by the quack neuro, once when I was huge with that tumor and once or twice after surgery. The only time my thyroid was out of whack was when I had the tumor. I hope Vernon is doing better these days.
(((hugs))) sweetie… I know what you are going through & it SUCKS!! it is possible it is a combination of things, not just one thing, kwim? my 1st dx was fibromyalgia, then they added the herniated & bulging cervical discs & arthritis & on & on… most of mine does originate fro the spinal problems since my whole spine is involved and so many nerves are being pinched shut or crushed… of course they are going to cause problems along the route they run… I am sending up healing prayers & positive thoughts for you… I try & ignore as much of it as I can too… but we all have our breaking point! ((healing hugs))
RSD covers most of my symptoms. All of my issues started after the stroke in 2006 when I was pregnant with Emma. Some of them back then were just so minor that I just worked through it. My mom had to remind me of some things that were going on back then.
Thank you 🙂
Suck Brandy. I’m sorry. I pray that the next dr. can help.
Thanks Tori! We need to have lunch soon!
Jenna @ For The Love of Baby! says
Sometimes I think doctors need a swift kick in the a*s to make them realize they are dealing with another HUMAN and not something they can play with out of their textbooks.
I am so sorry Brandy. 🙁 I hope she gets her head out of her ass and decides to really help you. Sigh. 🙁
Oh, Brandy. I’m so sorry! ((Hugs)) I’ve had doctors disappoint me before and I know it feels so hopeless. I only pray this neurologist can help you.
I am so sorry Brandy. I hope the neurologist is helpful and listens to what you have to say. (((hugs)))
Jen-Eighty MPH Mom says
I can only imagine how frustrated you must be. It doesn’t sound like she was LISTENING…which more doctors need to do!
I’m so sorry Brandy some doctors really should retake the compassion class in med school!