Not So Average Mama

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Making Decisions That Hurt

08.30.2018 by Girl on Fire // Leave a Comment

decisions that hurt

It really sucks to make decisions that hurt. I mean you know it’s the only decision you can make…but it sucks still to do it.  You know, like to make something “official”, but it is something that is downright heartbreaking to you.  I mean I need to feel useful.  I need to do stuff.  I […]

Categories // Health Tags // Complex Regional Pain Syndrome, CRPS, Disability, Dystonia, Help, Life Changes, MCAS, Neurogenic Stutter, Neurological Disease, Neurological disorder, Petit Mal Seizure, RSD, Service Dog, wheelchair

Mind Over Matter with CRPS… #CRPS #RSDsucks #RollerDerby

10.02.2013 by Girl on Fire // Leave a Comment

Crash Test Hunnies

When you live with something you can not change, you pretty much have to accept it.  CRPS is a part of me.  I always say that I have CRPS, but it doesn’t have me.  I do not let it rule my life.  Yea, there are days that I need to just stay on the couch […]

Categories // Around Our House Tags // chronic pain, Crash Test Hunnies, CRPS, House of Quad, Neurological disorder, North Texas Derby Revolution, Roller Derby, RSD

What’s Going On?

09.28.2010 by Girl on Fire // 3 Comments

I have been so busy that I really have not posted a personal post lately!  Our school year is so full this year.  Morgan has volleyball twice a week and both Morgan and Lauren have joined American Heritage Girls!  We are also sticking our toes into all sorts of activities this year!  SO glad I […]

Categories // Around Our House Tags // Auto Immune Disease, Crafts, Fibromylagia, homeschool, Neurological disorder

My Brain…

03.22.2010 by Girl on Fire // 24 Comments

Record Doctor's Appts

Today I went to the eye doctors and picked up all her notes and reports about me.  I also hit the hospital to get my films from when I was there last Wednesday.  They gave me a huge packet that was loaded with films.  There are probably close to 50 films in there.  Some are […]

Categories // Around Our House Tags // chronic pain disorder, head jerking, Headaches, neurological, Neurological disorder, Neurologist

The Verdict from the Eye Doctor, My Freak Pupil

03.11.2010 by Girl on Fire // 16 Comments

First of all, let me express to you how unhappy she was that I had not been back to get it checked sooner.  In my mind it was just a few months ago.  Apparently it was AUGUST! Ok…one more thing I have issues with is time. She dilated my eyes and checked them out.  No […]

Categories // Around Our House Tags // Mini Stroke, Neurological disorder, Pupil dilated, TIA

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