I still do not have insurance. I can’t really apply for anything until I get a new neurologist. Since my Rhuematologist moved away I’m kind of in a bind. The new Rheumatologist tried to discredit everything my old one had accomplished with me. She even wanted to take away my meds. I’m not sure how much longer she will refill, which is pretty scary. The other day I missed almost 2 full days of meds and the results were horrible! Pain was insane and my head twitching was worse. I can not be without the meds I am on.
All of this is so stressful and scary! I know that if I can get a new neurologist and they confirm my diagnosis that I would qualify for Medicare. Medicare isn’t just for those 65 and over. It is also for those that are permanently physically disabled or who have a congenital physical disability. I think I fall into that category…what about you? The last few days I had a lot of trouble walking again. Even blogging is extremely difficult right now. I had a dose of my meds last night and 2 so far today. I think it will take a few days to get back to a tolerable level.
Even when (and if) I do get medicare, I can not be certain that it will cover all of my doctors, medicine and treatments. So thinking about all this today got me looking into Medicare supplement plans. Something that I may need. Do you know anything about those?
My birthday is this month…another year older…woohoo…
Girl on Fire
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I am sorry you are in this situation Brandy – It is really a shame that you cannot get on Medicare RIGHT NOW and be taken care of. And that doctor, quite frankly, ticks me off. Take you off your meds? Ridiculous. Please let me know if there is anything I can do for you. Big Hugs 🙂
Thanks Katie 🙂
Sorry to hear you’re going through all this Brandy. I will remember you in prayer. Hang in there!
Thanks Jennifer!
Hope you are getting better soon and find a Dr that will listen.. I was in the same boat; I was diagnosed with an issue 15 years ago (!!) and was on medz that I was told I will have to be on forever to keep it regulated; we moved to a new city and the new doc checked my level ( while I was on the medz mind you) and said “I’m perfectly fine” and took me off the medz… I fought for 13 years with Dr.s to get back on and finally a month ago I found a Dr that agreed with me ( and my luck my blood levels finally showed it as well) and I’m back on medz… slowly getting my life back.. it was a struggle and took me 15 years…. it’s a shame that Dr.s can control us like this..good luck and I hope all will work out for you soon….
Sometimes it is just so hard to get through to them 🙁
I also hope you get things leveled out. Losing a DR is probably the toughest thing, especially if you had been with them long term.
My prayers are with you to get your diagnosis confirmed and get on Medicare!
Thanks Ellen 🙂
You waited all that time to get in to see the new Rheumatologist and she basically calls you a faker?
WTF??
No, she didn’t imply that I was faking at all. She just doesn’t know anything about RSD. She says I have a Neurological condition or Neurological disease and that I need to get into a Neurologist. What she doesn’t get is that RSD is Neurological. But no, she never implied I was faking at all. When the docs actually see me they can see the physical changes to my body.
Then if she can see the physical changes and the pain, why the hell would she deny you meds??
Any luck at all on a Neurologist?
(((hugs, Brandy))) I know the torture & anger over waiting & waiting … both hubby & myself had to go through the whole process to get medicare & SSD… all the way to to judge, we had a lawyer which was good as he made sure that a lots of medical problems were were enduring & normal (for us) every day life things were brought to the judges attention. have you applied at all yet, I hope so? email me if you have ANY questions…
I can’t apply without my current doc on board with the diagnosis and my diagnosing doctor moved out of state.