Not So Average Mama

North Dallas Texas Mom Blog

  • About
  • Privacy Policy
  • Disclosure
  • Advertising Info
  • Email
  • Start Here
  • Around Our House
    • Homeschool
    • Minimalist
    • Words of Wisdom
    • She’s Crafty
    • Monday Molly
    • Recipes
    • Uncategorized
  • Did You Know?
    • I’m So Cheap
      • Coupons!
  • Contests

Being Truthful With Children About RSD and Illness

08.22.2014 by Girl on Fire // 4 Comments

I belong to a few support groups for RSD/CRPS on Facebook. A woman local to me had joined one of these groups. She said (her wording) “Do you think it is fair to upset , horrify our young babies that won’t truly understand any of it . All they see is mommy crying non stop . To me that is being a selfish parent .”

I think she is wrong. She was talking about “hiding” her pain, illness and feelings from her friends and family.

To me this wrong.

I talk about RSD all the time to everyone. From people I meet as well as through this blog. It is important for people to know about RSD. You never know who you could be helping.

RSDribbon

I refused most treatments and still to this day I am without pain meds for RSD. Instead I joined a Roller Derby rec team, then I began coaching with the Jr. Derby little ones called Weebellions. RSD took a lot from me, but it also opened up other doors.

To me hiding the truth of LIFE is selfish. Life isn’t always perfect. RSD sucks yea…but you know what….we’re still living.

I would like to think that my children have a stronger compassion and understanding of things people go through.

I am in a major flare right now. My girls know this. We still live a normal life. I still function, just differently than before. My kids are amazing, I do not think that being aware of my RSD has damaged them in anyway. I truly believe that seeing me fight through it will make them stronger people.

Quit hiding the truth from children, they are people..human. In fact I think we should all sit back and let them take the lead….we just might be better off…

 

Posted with BlogsyPosted with Blogsy

Related Posts

  • Accepting the Changes, Living With RSDAccepting the Changes, Living With RSD
  • What is it?What is it?
  • My Plan of Action…CRPS/RSDMy Plan of Action…CRPS/RSD
  • Why I Don’t Take Opioids for My PainWhy I Don’t Take Opioids for My Pain
  • I love my painful life…I accept it! #CRPS #RSDSUCKSI love my painful life…I accept it! #CRPS #RSDSUCKS
  • And Then I Cried.  A day in my Life with CRPS #CRPS #RSDsucks #RollerDerbyAnd Then I Cried. A day in my Life with CRPS #CRPS #RSDsucks #RollerDerby
The following two tabs change content below.
  • Bio
  • Latest Posts
My Twitter profileMy Facebook profileMy Google+ profileMy Instagram profileMy Pinterest profile

Girl on Fire

Photographer at Loudmouth Photography
Brandy is the wife to a carpenter/musician and the mother of 3 amazingly awesome homeschool/unschooled girls. Brandy is a Photographer as well as a Coach for the Weebellion as part of Rolling Rebellion Jr. Roller Derby. Brandy is passionate about many things and suffers from a very painful and degenerative neurological disease called CRPS/RSD.
My Twitter profileMy Facebook profileMy Google+ profileMy Instagram profileMy Pinterest profile

Latest posts by Girl on Fire (see all)

  • Benefits of Dual Diagnosis Treatment - January 25, 2023
  • How to Help Family With Mental Health Issues? - January 3, 2023
  • A Perfect Cup of Coffee Every Time – The Mr. Coffee One-Touch Coffeehouse+ Is A Perfect Christmas Gift! - December 20, 2022

Share this:

  • Click to share on Facebook (Opens in new window)
  • Click to share on Pinterest (Opens in new window)
  • Click to share on Twitter (Opens in new window)
  • Click to share on Reddit (Opens in new window)
  • Click to email this to a friend (Opens in new window)
  • Click to print (Opens in new window)
  • Click to share on Tumblr (Opens in new window)

Related

Categories // Health Tags // CRPS, health, RSD

Comments

  1. Donna says

    August 24, 2014 at 8:35 am

    I know from being around you and the kids so much now, that them knowing is very helpful. They know about their grandpa, the intracranial bleed and know he is not always mentally there and this helps them not be scared, they know how to help him, sing dance make him laugh and be in the now. Your girls do not beg, whine etc when they cannot do something they want because they are always busy, you keep them going and they know when to let mom rest. They are awesome girls and I do believe the honesty with any illness they come across helps them be stronger not only now but for their future. They have compassion for others who cannot do as they can.

    Reply
  2. Julie Wood says

    August 29, 2014 at 8:43 am

    It is good to tell your children that you have an illness and show them how you cope with it, and be a positive role model to them. There will be bad days in life and we need to be honest about what is going on with us as parents. We can tell our kids in a positive way.

    Reply
  3. shelly peterson says

    September 1, 2014 at 1:10 am

    I think it’s a great idea to sit and discuss with your children about how one is feeling and what they are going through. Kids always know when something isn’t right, specially on the bad days. It’s best they know up front about it and can some what understand.

    Reply

Trackbacks

  1. Changes Made Last Year Concerning the Treatment of My RSD (CRPS) | Not So Average Mama says:
    January 2, 2017 at 9:04 pm

    […] made some huge changes last year concerning the treatment of my RSD (CRPS).  I went against everything I’ve been told and dropped every single one of my […]

    Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Check out my new site Habitually Awesome!

internet marketing

Not So Average Mama is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com. Not So Average Mama also uses other affiliate programs to earn commissions. When you click on links in my posts and make a purchase, I may earn a commission. Please see my disclosure.

trendy baby clothes

Email Subscribe

Motorola Droid Exploding Phone?

Motorola Droid Exploding Phone?

My dad just called me because they knew that I had bought a new smart phone, the HTC EVO 4G Android Phone (Sprint).  I Love love love this phone, but that’s another post. Anyhow, they thought I should know about this exploding Motorola Droid phone!  So I had to look it up.  I was surprised […]

Share this:

  • Click to share on Facebook (Opens in new window)
  • Click to share on Pinterest (Opens in new window)
  • Click to share on Twitter (Opens in new window)
  • Click to share on Reddit (Opens in new window)
  • Click to email this to a friend (Opens in new window)
  • Click to print (Opens in new window)
  • Click to share on Tumblr (Opens in new window)
Load More...Follow on Instagram

© 2023 · Not So Average Mama ·

loading Cancel
Post was not sent - check your email addresses!
Email check failed, please try again
Sorry, your blog cannot share posts by email.
We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.Ok