I wanted to blog yesterday, but my site was on lock down by google. Apparently an ad I am running was hacked on their end and it put malicious code on my site. It is taken care of now.
Saturday for my 365 project I took and posted a photograph of myself. Probably one of the bravest things I have ever done. I’m going to post it here for you to see if you haven’t already. It’s pretty chocking even for me to see. This change in my appearance happened so quickly. I wasn’t exaggerating when I said I was looking like I did when I was pregnant.
Yesterday morning I called the gynecologic oncologist I was referred to. I talked to the PA and she was shocked that I was discharged Friday night. With the pressure the mass is putting on my Vena Cava and my other organs it is an emergency situation. Sadly though, this oncologist will not be seeing me because I do not have insurance. Some doctors take self pay (such as my neuro and rheum) but not all will let you pay on your own.
I called indigent health care and they too had to deny me. Not because they wanted to, but because it is the law. For a family of 5 you must bring in LESS than $700 a month. I was floored. A family of 5 living on lesse than $700? I don’t get it, but it is what it is.
My parents will be arriving sometime around 4pm today. My mom is going to take me to a different hospital and hopefully get me admitted for surgery. We know we will be paying on this for a very long time and we accept that. but we have to get it out of me. If it is cancer it could spread to my other organs. The longer it is there, the more damage it is doing. I can already tell it is affecting my kidney function.
I’m weaning myself off of Amitriptylin. This morning I had a sever headache and shakes and I contribute that to the withdrawl of trying to wean off so quickly.
My friends and family are amazing. I have so many words of support coming in. It truly helps. My children are doing well. We are a strong family and it will take a lot more than this to bring us down. Thank you all for your support. It means the world to us. I will continue to blog as I can, update facebook and continue my 365 project.