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Accepting the Changes, Living With RSD

07.31.2014 by Girl on Fire // 5 Comments

Pain has changed me. Some changes have been bad, some have been good. I’m sure you’re wondering what good could come from living with RSD (CRPS) the disease of constant pain?

The bad changes and the ones that are difficult to accept are the losses I have experienced by living with RSD.

I lost the ability to work as a tattoo artist. I lost the ability to draw and paint in the way that I could before. I lost the ability of having beautiful handwriting. I lost the ability to have my photography business. I lost the ability to drive distances greater than 10-15 minutes away. I lost the ability to enjoy live music. I lost the ability to work at a real job. I lost the ability to experience no pain. The losses are greater than this short list, but I think you get it.

I have also gained many things living with RSD.

I have gained stronger compassion. I have gained a stronger understanding. I have gained amazing friends that support me and care. I have gained the ability to not accept that RSD is the end of living a normal life…just a new normal. I have gained strength.  I have gained determination.  I have gained dedication.

My life is not over.  It has changed…but it is not over.  I am a fighter.  I refuse to be beaten.  I will not lose. I am a rock star. I kick ass.  I am the Girl on Fire.Living with RSD

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Girl on Fire

Photographer at Loudmouth Photography
Brandy is the wife to a carpenter/musician and the mother of 3 amazingly awesome homeschool/unschooled girls. Brandy is a Photographer as well as a Coach for the Weebellion as part of Rolling Rebellion Jr. Roller Derby. Brandy is passionate about many things and suffers from a very painful and degenerative neurological disease called CRPS/RSD.
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Categories // Health Tags // CRPS, Disease, health, Life, loss, Pain, Positive, RSD

Comments

  1. Deborah Gardner says

    August 1, 2014 at 9:54 am

    I love your outlook! I also have chronic pain and know the importance of overcoming it. Great job and keep strong!

    Reply
  2. Donna says

    August 1, 2014 at 1:58 pm

    Yes you are a Rock Star and have learned over the years from others who suffer how to fight and push yourself to be the best that you can be at whatever you try, even if it is not good to others. You give it your All!
    You also help others so much, donating your time even when in pain, taking photos for some who are losing their battles but want to leave memories, helping at benefits and numerous other things that we know is not easy for you. You have helped your dad and I so very much since his horrible brain injury. All the times when you were suffering but we needed you, you still came running.

    We love you and know you will, if anyone can, beat this horrible RSD

    Reply
  3. ellen says

    August 1, 2014 at 7:23 pm

    I also have a chronic illness that affects everyday life. It has taken away many of the same things yours has. I think that having a chronic illness gives a person more empathy toward others, and also an abilty to see others strengths who have to overcome things.

    Keep fighting!

    Reply
  4. Marisa says

    August 2, 2014 at 10:40 pm

    Staying positive is the best thing you can do! My mom survived cancer and truly believes it was because she never lost hope.

    Reply
  5. shaunie says

    August 22, 2014 at 2:39 am

    Would have to say that your story is uplifting as you battle life. Love that it is inspiring others. would love to share your story.

    Reply

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