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Help For Madeline

09.23.2008 by Girl on Fire // 1 Comment

Meet Madeline, she was born on July 21st 2008. She has an extremely rare skin disorder called Congenital Pigmented Nevus (CPN).
This disorder causes some problems for Miss Madeline and she really needs this stuff removed!

Her chances of developing Melanoma (skin cancer) are much higher than with “normal” skin.

She has trouble with overheating – the nevus skin cannot sweat.

There are long term social and psychological challenges of living with the nevus.

She’ll have restricted activity due to the structure of the nevus and UV exposure.

Guess what though….Insurance will not cover the surgery to remove it! So, Madeline needs our help! They have set up a fund to help Madeline raise the money she needs to get her surgery. Her little body is covered with this. She has one very large area on her back, and many many small ones all over her little body.

So what can we do? Well first of all you can help spread the word about Madeline! Secondly you can donate some funds, or you could arrange a fundraiser.

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Girl on Fire

Photographer at Loudmouth Photography
Brandy is the wife to a carpenter/musician and the mother of 3 amazingly awesome homeschool/unschooled girls. Brandy is a Photographer as well as a Coach for the Weebellion as part of Rolling Rebellion Jr. Roller Derby. Brandy is passionate about many things and suffers from a very painful and degenerative neurological disease called CRPS/RSD.
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Latest posts by Girl on Fire (see all)

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Categories // Did You Know? Tags // Congenital Pigmented Nevus (CPN), pread the word about Madeline

Comments

  1. Misti Mayhem says

    September 27, 2008 at 12:18 am

    She is a beautiful little girl… We should do something to help… Just gotta put our heads together & figure something out.. with your talents & my hyperactivity maybe we can put a dent in it!!

    Reply

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