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And Then I Cried. A day in my Life with CRPS #CRPS #RSDsucks #RollerDerby

11.03.2013 by Girl on Fire // 10 Comments

Yesterday was so hard.  After a very rainy day last week, I was left coming out of a pretty bad pain flare from CRPS.  I sucked it up as much as I could, but sometimes I just am not that strong.  Yesterday morning was roller derby practice.  I had skipped the practices of the previous week due to pain, but I felt I needed to go yesterday.Crash Test Hunnies

When my alarm went off I really did not want to crawl out of bed.  I put it off and put it off until finally I said ENOUGH and got myself out of the bed.  My new friend Candy picked me up and I rode with her to derby practice.  Just one more of the amazing women I have met through derby.  Women that push me beyond what I think my limits are.

We started off practice as usual and I was making it, barely…but I was making it.  Then we went into a drill that was blocking with a jammer trying to push through.  I made it through this for a few rounds until I couldn’t bare the touching and closeness anymore, so I pulled off the track and skated laps.  We moved on to some side stepping drills and my brain started to click and get it.  Not pretty, but I understood what I needed to do and what I needed to work on.

Then…then it was time for our laps.  You have to do 25 laps in 5 min.  Now I know I can do this.  I have done it and more, but yesterday was not so great.  I did skate my laps, but not without anger and cussing the entire time.  I was beyond frustrated.  When we finished that I immediately had to go remove my pads.  My pads are one of the hardest things for me to deal with concerning derby, but they are necessary.  My body gets so inflamed and the burning and pain is too much.  Then I cried.  I cried because of the pain, I cried because of the frustration, I cried because I felt like a failure for not doing my best.

A bunch of great ladies came over and reminded me how far I had come and how much more I push myself than many other people.  They told me that I inspire people, they told me that I make a big step each time I show up.  They reminded me that I did do my best, my best for that day.  Not everyday will be the same for me…I need to remember that.

Surround yourself with positive people, it helps!

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Girl on Fire

Photographer at Loudmouth Photography
Brandy is the wife to a carpenter/musician and the mother of 3 amazingly awesome homeschool/unschooled girls. Brandy is a Photographer as well as a Coach for the Weebellion as part of Rolling Rebellion Jr. Roller Derby. Brandy is passionate about many things and suffers from a very painful and degenerative neurological disease called CRPS/RSD.
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Categories // Around Our House Tags // chronic pain, CRPS, Roller Derby, RSD

Comments

  1. Donna says

    November 3, 2013 at 6:00 pm

    Look at those who have taken up derby because of you, thinking they could not because of medical issues but found out that it actually is helping them too. When they cannot, that is Ok, but when they can, that is great! Same with you, do your best, push when you can but listen to your body, When it is time for a break, take it, and do not berate yourself. You Rock!

    Reply
    • Girl on Fire says

      November 4, 2013 at 1:30 pm

      I get it from you of course…

      Reply
  2. Cris says

    November 4, 2013 at 10:20 am

    You’re an inspiration and this post is a great motivation for everyone who needed to do or finish whatever is up on their plate – be it just to work out, finish a 5k run, complete a project, etc. The fact that you went through it even though you have to deal with pain, is a great achievement! Thanks for sharing this.

    Reply
    • Girl on Fire says

      November 4, 2013 at 1:30 pm

      Thanks! I appreciate that 🙂

      Reply
  3. camijai says

    November 4, 2013 at 1:16 pm

    Hello,I enjoyed your story and was envious of your ambition. I wonder if you worry about further injury and how you really are? after words?

    Reply
    • Girl on Fire says

      November 4, 2013 at 1:26 pm

      For me my CRPS is already full body….so I don’t worry about spreading because that already happened. Mine seems to have beens triggered by an injury to the brain from a small stroke.

      Of course I worry about breaking bones… but if I let that hold me back from living then that would be a boring life. In fact I have an awesome sticker on my helmet that says: “What would life be if we had no courage to attempt anything?” -Vincent Van Gogh

      The exercise that I get from Roller Derby Practice has been very beneficial for me. A lot of issues arise from muscle waste from NOT doing anything…we have to force ourselves to get moving and in the end it is better. It hurts, but you have to do something. Know what I mean?

      Reply
  4. Carrie says

    November 5, 2013 at 12:37 am

    You are definitely an inspiration – and I appreciate the reminder that my excuses for not working out suck!

    Reply
  5. Arena says

    November 5, 2013 at 9:18 am

    ((Hugs)) Thanks for sharing your struggles — it’s a great reminder to push through and make the most of everything you try. Even with limitations, your determination to do your best is an inspiration!

    Reply
  6. Gena says

    November 5, 2013 at 10:22 pm

    This is good advice! I hope it gets easier for you soon.

    Reply

Trackbacks

  1. What it's Like to Have Chronic Pain Meltdowns | Not So Average Mama says:
    January 18, 2017 at 11:42 am

    […] likely I just am trying to keep it in check to avoid other people seeing it.  I’ve had them happen in public and it is embarrassing.  All we can do is keep on keeping on and hope for as better […]

    Reply

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