Yesterday my dad called me and asked me to go the hospital. After I got off the phone with him I talked to the Rheumatologists office. They spoke with the doctor and called me back to tell me that he too suggested I go into the ER. My appearance had changed so much in a week that it was obvious something was bad. When I got to the ER and back to be seen, the PA began feeling my abdomen. She asked me if I still had my Uterus, Ovaries and Gall Bladder. I told her that yes, I had all my parts still.
She said she was going to have a CatScan done to see what was going on in there. I am allergic to contrast dye so they had to do a dry scan. In the ER I was in a room that had a curtain instead of a door. I heard all the calls going in and out of different results of labs on the people in the ER. I then heard the PA answer the phone and say some words I did not want to hear. I heard her say 16 (that was my number) and say “Ovarian Cancer, I knew it!”.
Moments later she was in my room telling me I had a mass that appeared to be attached to my Ovary and that the doctor would be in to see me. Just a few minutes later he arrived and told me that I had a mass the size of a volley ball that appeared to be attached to my ovary. I asked him if the pregnancy look I had and the pressure on my ribs was my internal organs and he said yes, that the organs are all compressed and pushed up into my ribs. He said that with a mass this size that was growing so rapidly that it could be cancer and that he wanted me to see a Doctor that was a specialist of gynecologic oncology. He said that most likely I will be having a complete hysterectomy. They wrote me a RX for pain and sent me on my way.
I’ve been sick this past year with all sorts of strange things…could it all be caused from this? My sed rates keep climbing. Monday I call the specialist and then find out where I go from here. Surgery will be very soon and then I will find out afterward if it is indeed cancer. If it is cancer then I will begin chemotherapy after the surgery. I’m going to continue to blog. I was asked if I was going to share this new news and I said yes. If anything, maybe this journey of the past year could help someone else. So many strangers have become friends through all of this and I appreciate each and every one of you. I ask that you pray for me and my family to help us get through this time. I will be attempting to keep up with my blogging obligations. I will most likely joke about this ordeal. Please know that is my way of dealing with it.
One thing that is scary is the mass is pressing on my Vena Cava. This is why for the past week I have had to sleep pretty much sitting up. When I lay in bed on my back, the mass is pressing on my Vena Cava and restricting the blood flow to my heart and makes breathing difficult. They told me that is crucial that I do not lay on my back. I also start vomiting if I lay on side. So bedtime for me is semi sitting up on the couch. Today I began having pain in my kidneys. I think this mass is on steroids…
I’m weaning off the Amitriptyline so that I will be able to take the medications I will need during and after surgery. This is a difficult thing to do. I may seem ditzy and make little sense during this time. I will also be continuing my 365 project through this. It’s things to keep my mind occupied and busy, not to mention the documentation of my year.
I also am looking into getting womens health care to help cover the expenses of surgery. The expense is weighing heavily on me and I know we just have to do what we have to do. My family is strong. Thank you all.
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